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Journal articles

Bagg, M.K., Hübscher, M., Rabey, M., Wand, B.M., O’Hagan, E., Moseley, L., Stanton, T.R., Maher, C.G., Goodall, S., Saing, S., O’Connell, N.E., Luomajoki, H. & McAuley, J.H. 2017, 'The RESOLVE Trial for people with Chronic Low Back Pain: Protocol for a randomised clinical trial', Journal of Physiotherapy, vol. 63, no. 1, pp. 47-48.

Carrara, S. & Longden, T. 2017, 'Freight futures: The potential impact of road freight on climate policy', Transportation Research Part D: Transport and Environment.
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This paper describes changes to the modelling of the transport sector in the WITCH (World Induced Technical Change Hybrid) model to incorporate road freight and account for the intensity of freight with respect to GDP. Modelling freight demand based on the intensity of freight with respect to GDP allows for a focus on the importance of road freight with respect to the cost-effective achievement of climate policy targets. These climate policy targets are explored using different GDP pathways between 2005 and 2100, which are sourced from the Shared Socioeconomic Pathways (SSPs) database. Our modelling shows that the decarbonisation of the freight sector tends to occur in the second part of the century and that the sector decarbonises by a lower extent than the rest of the economy. Decarbonising road freight on a global scale remains a challenge even when notable progress in biofuels and electric vehicles has been accounted for.

Cole, A., Shah, K., Mulhern, B., Feng, Y. & Devlin, N. 2017, 'Valuing EQ-5D-5L health states ‘in context’ using a discrete choice experiment', European Journal of Health Economics.
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Cronin, P.A., Kirkbidge, B., Bang, A., Smith, D., Parkinson, B. & Haywood, P. 2017, 'Long-term health care costs for patients with prostate cancer: A population-wide longitudinal study in New South Wales Australia', Asia Pacific Journal of Clinical Oncology.
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Cronin, P.A., Reeve, R., Viney, R., McCabe, P. & Goodall, S. 2017, 'The impact of childhood language difficulties on healthcare costs from 4 to 13 years: Australian longitudinal study', International Journal of Speech-Language Pathology.

Daniels, B., Lord, S., Kiely, B., Houssami, N., Lu, C., Ward, R., Haywood, P. & Pearson, S. 2017, 'Use and outcomes of targeted therapies in early and metastatic HER2–positive breast cancer in Australia: Protocol detailing observations in a whole of population cohort', BMJ Open, vol. 7:e014439.
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De Abreu Lourenco, R., Haas, M., Hall, J. & Viney, R. 2017, 'Valuing meta-health effects for use in economic evaluations to inform reimbursement decisions: a review of the evidence', PharmacoEconomics, vol. 35, no. 3, pp. 347-362.
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De Abreu Lourenco, R., Kenny, P., Haas, M.R. & Hall, J. 2017, 'Factors affecting general practitioner charges and Medicare bulk-billing: results of a survey of Australians - erratum.', Med J Aust, vol. 206, no. 7, pp. 326-326.

de Groot, S., van der Linden, N., Franken, M.G., Blommestein, H.M., Leeneman, B., van Rooijen, E., van der Hoeven, J.J.M., Wouters, M.W., Westgeest, H.M. & Uyl-de Groot, C.A. 2017, 'Balancing the Optimal and the Feasible: A Practical Guide for Setting Up Patient Registries for the Collection of Real-World Data for Health Care Decision Making Based on Dutch Experiences', Value in Health, vol. 20, no. 4, pp. 627-636.
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© 2016 International Society for Pharmacoeconomics and Outcomes Research (ISPOR). Objectives: The aim of this article was to provide practical guidance in setting up patient registries to facilitate real-world data collection for health care decision making. Methods: This guidance was based on our experiences and involvement in setting up patient registries in oncology in the Netherlands. All aspects were structured according to 1) mission and goals ("the Why"), 2) stakeholders and funding ("the Who"), 3) type and content ("the What"), and 4) identification and recruitment of patients, data handling, and pharmacovigilance ("the How"). Results: The mission of most patient registries is improving patient health by improving the quality of patient care; monitoring and evaluating patient care is often the primary goal ("the Why"). It is important to align the objectives of the registry and agree on a clear and functional governance structure with all stakeholders ("the Who"). There is often a trade off between reliability, validity, and specificity of data elements and feasibility of data collection ("the What"). Patient privacy should be carefully protected, and address (inter-)national and local regulations. Patient registries can reveal unique safety information, but it can be challenging to comply with pharmacovigilance guidelines ("the How"). Conclusions: It is crucial to set up an efficient patient registry that serves its aims by collecting the right data of the right patient in the right way. It can be expected that patient registries will become the new standard alongside randomized controlled trials due to their unique value.

Fiebig, D., Viney, R.C., Knox, S., Haas, M., Street, D., Hole, A.R., Weisberg, E. & Bateson, D. 2017, 'Consideration sets and their role in modelling doctor recommendations about contraceptives', Health Economics, vol. 26, no. 1, pp. 54-73.
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Gardner, T., Refshauge, K., McAuley, J., Hübscher, M., Goodall, S. & Smith, L. 2017, 'Beliefs and attitudes and their influence on clinical practice in chronic low back pain: A systematic review of quantitative and qualitative studies', Journal of Physiotherapy.

Gu, M.Z. & Johar, M. 2017, 'Profiling hospital utilisation in a mixed public-private system', Applied Economics, vol. 49, no. 4, pp. 361-375.
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Haeusler, G., Thursky, K., Mechinaud, F., Babl, F., De Abreu Lourenco, R., Slavin, M. & Phillips, B. 2017, 'Predicting Infectious ComplicatioNs In Children with Cancer: an external validation study', British Journal of Cancer.

Johar, M., Mu, C., van Gool, K. & Wong, C.Y. 2017, 'Bleeding hearts, profiteers, or both specialist physician fees in an unregulated market', Health Economics, vol. 26, no. 4, pp. 528-535.
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Kenny, P.M., Goodall, S., Street, D. & Greene, J. 2017, 'Choosing a Doctor: Does presentation format affect the way consumers use health care performance information?', The Patient: Patient Centered Outcomes Research.
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Luckett, T., Chenoweth, L., Phillips, J., Brooks, D., Cook, J., Mitchell, G., Pond, D., Davidson, P., Beattie, E., Luscombe, G., Goodall, S., Fischer, T. & Agar, M. 2017, 'A facilitated approach to family case conferencing for people with advanced dementia living in nursing homes: Perceptions of Palliative Care Planning Coordinators and other health professionals in the IDEAL Study', International Pscychogeriatrics.

McRae, I. & Van Gool, K. 2017, 'Variation in fees of medical specialists: problems, causes and solutions', Medical Journal of Australia, vol. 206, no. 4, pp. 162-163.

McRae, I., Van Gool, K., Hall, J. & Yen, L. 2017, 'The role of cost on failure to access prescribed pharmaceuticals – the case of statins', Applied Health Economics and Health Policy.

Mu, C., De Abreu Lourenco, R. & van Gool, K. 2017, 'Is low priced primary care bad for quality? Evidence from Australian general practice', Applied Economics.

Mulhern, B., Labeit, A., Rowen, D., Knowles, E., Meadows, K., Elliott, J. & Brazier, J. 2017, 'Developing preference-based measures for diabetes: DHP-3D and DHP-5D', Diabetic Medicine.
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Mulhern, B., Norman, R., Lorgelly, P., Lancsar, E., Ratcliffe, J., Brazier, J. & Viney, R. 2017, 'Is Dimension Order Important when Valuing Health States Using Discrete Choice Experiments Including Duration?', PharmacoEconomics, vol. 35, no. 4, pp. 439-451.
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Mulhern, B.J., Bansback, N., Hole, A.R. & Tsuchiya, A. 2017, 'Using Discrete Choice Experiment with duration to model EQ-5D-5L health state preferences: Testing experimental design strategies', Medical Decision Making, vol. 37, no. 3, pp. 285-297.
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Mulhern, B.J., Pink, J., Rowen, D., Borghs, S., Butt, T., Hughes, D., Marson, A. & Brazier, J. 2017, 'Comparing generic and condition specific preference based measures in epilepsy: EQ-5D-3L and NEWQOL-6D', Value in Health, vol. 20, no. 4, pp. 687-693.
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Nerich, V., Saing, S., Gamper, E.-.M., Holzner, B., Pivot, X., Viney, R. & Kemmler, G. 2017, 'Critical appraisal of health-state utility values used in breast cancer-related cost-utility analyses.', Breast Cancer Res Treat.
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PURPOSE: To review the data sources of health-state utility values (HSUVs), as well as their elicitation and use, in 140 breast cancer-related cost-utility analyses (CUAs), and to provide a critical appraisal of these. METHODS: A checklist was developed to guide the process of the critical appraisal. It is divided into three parts: the data source (three questions), elicitation method (four questions), and use (ten questions) of HSUVs in CUAs. Two independent reviewers performed the data extraction. A consensus was reached in case of disagreements. Data sources were categorized as "original study," "derived from the literature," or "other." RESULTS: The data source of HSUVs was always specified. When HSUVs were derived from the literature (90% of cases), the authors referred to a median number of two references as data sources. The critical appraisal of the elicitation of HSUVs in CUAs revealed considerable variability in terms of the quality of the reporting of the data source selection of HSUV. More details were provided by authors when HSUVs were elicited from an original study rather than derived from the literature. The use of HSUVs elicited from an original study was generally better described in terms of the checklist than were those derived from the literature. CONCLUSIONS: Based on the developed checklist, we were able to highlight the challenges that authors are facing when trying to adequately report HSUV used in CUAs. Our proposed checklist offers a good starting point for encouraging more explicit and comprehensive reporting of HSUVs in CUAs.

Nguyen, K.-.H., Mulhern, B., Kularatna, S., Byrnes, J., Moyle, W. & Comans, T. 2017, 'Developing a dementia-specific health state classification system for a new preference-based instrument AD-5D', Health and Quality of Life Outcomes, vol. 15.
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Norman, R., Viney, R., Aaronson, N.K., Brazier, J.E., Cella, D., Costa, D.S.J., Fayers, P.M., Kemmler, G., Peacock, S., Pickard, A.S., Rowen, D., Street, D.J., Velikova, G., Young, T.A. & King, M.T. 2017, 'Erratum to: Using a discrete choice experiment to value the QLU-C10D: feasibility and sensitivity to presentation format.', Qual Life Res.
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Oliver, D. & Yu, S. 2017, 'The Australian labour market in 2016', Journal of Industrial Relations, pp. 002218561769387-002218561769387.
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Prichard, R., Hayward, C., Davidson, P., Newton, P., Goodall, S. & Kershaw, L. 2017, 'Left ventricular device implantation impacts on hospitalisation rates, length of stay and out of hospital time', Heart, Lung and Circulation.

Reeve, R., Srasuebkul, P., Langton, J., Haas, M.R., Viney, R. & Pearson, S.-.A. 2017, 'Health care use and costs at the end of life: A comparison of elderly Australian decedents with and without a cancer history', BMC Palliative Care.

Shah, K., Mulhern, B., Longworth, L. & Janssen, M.F. 2017, 'Views of the UK general public on important aspects of health not captured by EQ-5D', The Patient: Patient Centered Outcomes Research.
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Stolk, E.A., Craig, B.M., Mulhern, B. & Brown, D.S. 2017, 'Health Valuation: Demonstrating the Value of Health and Lifespan.', Patient.
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Thomas, A.A., Pearce, A., Sharp, L., Gardiner, R.A., Chambers, S., Aitken, J., Molcho, M. & Baade, P. 2017, 'Socioeconomic disadvantage but not remoteness affects short-term survival in prostate cancer: A population-based study using competing risks', Asia-Pacific Journal of Clinical Oncology, vol. 13, no. 2, pp. e31-e40.
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van der Linden, M.C., Khursheed, M., Hooda, K., Pines, J. & Van Der Linden 2017, 'Two emergency departments, 6000 kilometers apart: differences in patient flow and staff perceptions about crowding', International Emergency Nursing.

Wakefield, C., Fardell, J., Doolan, E., Drew, D., De Abreu Lourenco, R., Young, A. & Cohn, R. 2017, 'Grandparents of children with cancer: quality of life, medication and hospitalizations', Pediatric Blood and Cancer, vol. 64, no. 1, pp. 163-171.
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Wong, C., Greene, J., Dolja-Gore, X. & van Gool, K. 2017, 'The rise and fall in out-of-pocket costs in Australia: An analysis of the Strengthening Medicare Reforms', Health Economics.
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Conferences

Brazier, J. & Mulhern, B. 2017, 'Utility measures - Short Course', International Society for Pharmacoeconomics and Outcomes Research 22nd Anual International Meeting, Boston, USA.

De Abreu Lourenco, R. 2017, 'Estimating non (meta) health effects', ISPOR-AC Workshop, Sydney.

Mulhern, B., Norman, R., De Abreu Lourenco, R. & Viney, R. 2017, 'Investigating the relative value of health and social care related quality of life using discrete choice', International Society for Pharmacoeconomics and Outcomes Research 22nd Annual International Meeting, Boston, USA.

Oppe, M., Janssen, M.F., Luo, N., Mulhern, B. & Craig, B. 2017, 'DS-WG research: Where we are, how we got there, and where we are going', EuroQol Academy, Noordwijk, Netherlands.

Viney, R., Stolk, E., Mulhern, B., Norman, R. & Rand Hendriksen, K. 2017, 'DCE valuation of the EQ-5D: Lessons learned and remaining challenges', EuroQol Academy, Noordwijk, Netherlands.

Reports

Sangster, J., Furber, S., Allman-Farinelli, M., Phongsavan, P., Redfern, J., Haas, M.R., Church, J., Mark, A. & Bauman, A. NSW Ministry of Health 2017, A population-based lifestyle intervention to promote healthy weight and physical activity in people with cardiac disease: The PANACHE trial, Sydney.

Other

Mulhern, B., Feng, Y., Shah, K., van Hout, B., Janssen, M.F., Herdman, M. & Devlin, N. 2017, 'Comparing the UK EQ-5D-3L and the English EQ-5D-5L Value Sets', Office of Health Economics Research Paper 17/02.